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CARES Foundation

http://www.caresfoundation.org
Purpose:

Improve the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH) read more

CARES Foundation

http://www.caresfoundation.org
Purpose:

Improve the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH)

Description:

CARES Foundation is committed to improving the lives of individuals and families affected by Congenital Adrenal Hyperplasia (CAH) through proactively advancing research for a cure, educating the public and healthcare professionals about all forms of CAH, advocating for newborn screening, and providing support services and resources vital to the CAH community worldwide.

CAH is a family of inherited disorders affecting the adrenal gland. The health affects of adrenal insufficiency, which is the cardinal feature of CAH, range from mild (hirsutism and acne) to severe (premature puberty, genital anomalies, infertility, depression, insulin resistance, salt-wasting, adrenal crisis and death) and, while complex, can be managed with adequate understanding and medical treatment of the disorder. CAH is the most common recessive genetic disorder identified to date, and occurs at extremely high rates in certain ethnic populations, most notably the Ashkenazi Jewish (1 in 27), Hispanic (1 in 40), and Italian (1 in 300) communities. CAH is severely under-diagnosed, underserved, under-supported and underfunded.

CARES Foundation is the only US organization dedicated entirely to CAH, establishing itself as an essential resource for those affected as well as for the healthcare community.

Contact info:

1-866-227-3737
908-364-0272

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2009 No Sweat Run for a Cure

RSVP
May 11 | 01:00 AM
No-sweat09_logo

Event Information

This is a virtual run. You can contribute to a team already formed or from your own team at http://CARES.kintera.org/2009-NoSweat and invited your friends, family and colleagues to join your team.

Location

virtual
2414 Morris Ave.
Union, NJ, 07083

About Organization

CARES Foundation is committed to improving the lives of patients and families affected by Congenital Adreanal Hyperplasia (CAH) through proactively advancing research for a cure, educating the public and healthcare providers about all forms of CAH, advocating for universal newborn screening, and providing support services and resources viatal to the CAH community.

CAH is a genetic disorder affecting the adreanl gland. If not detected shortly after birth, its most severe form can lead to death in the newborn period. CAH is the most common genetic disorder identified to date adn is most prevalent in the Ashkenazi Jewish, Hispanic and Italian ethnicities.

Contact Information

www.caresfoundation.org

Phone: 1-866-227-2727
Email: dina@caresfoundation.org